in general:
You Have the Right…
➢
To receive considerate, respectful, and compassionate
care regardless of your or your child’s age, gender, race, national
origin, religion, medical condition or disabilities;
➢
To be treated as a partner in making decisions about your child’s care;
➢
To consideration for your personal beliefs and values;
➢
To responses to your requests, needs, and concerns;
➢
To request a language interpreter if necessary;
➢
To ask for protective and advocacy services in cases of abuse or
neglect.
the
right to
informed consent
You Have the Right…
➢ To information that is complete and understandable;
➢ To be told about the specific nature of your
child’s condition;
➢ To be told why your doctor is recommending a
specific treatment;
➢ To be told of evidence supporting the recommended
treatment;
➢
To be told of evidence not supporting the recommended treatment;
➢ To receive information about the possible risks and
benefits resulting from the recommended treatment;
➢ To be told about possible alternative treatments
including non-treatment;
➢ To
receive
information about the risks and benefits resulting from possible
alternative forms of treatment and non-treatment;
➢ To make decisions free from coercion and pressure;
➢ To have adequate time to make your decisions;
➢ To be informed if your child’s doctor is
considering your child as part of a medical research program;
➢ To decline to participate in or withdraw from a
research project without fear that your child’s care will be
compromised;
➢ To refuse
treatment that is not in the best interest of your child.
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the right to
privacy
You Have the Right…
➢ To
full consideration of privacy and
confidentiality in care discussions, examinations, and treatments;
➢ To expect that your child’s condition should not be
the subject of gossip and only discussed when necessary for treatment;
➢ To accompany your
child during examinations;
➢ To know of the psychological consequences
unnecessary exams may have on your child;
➢ To only allow exams of your child that are
necessary for treatment;
➢
To limit persons present during
examinations to only those individuals necessary for treatment;
➢ To see or get a copy of your child’s medical
records and have the information explained to you.
➢ The
privacy of your child’s medical records is protected by a federal law,
the Health Insurance Portability and Accountability Act of 1996 (HIPAA).
You may have additional
rights protected by state law, professional
guidelines, or regulatory agencies.
you have options
If you feel that
your rights or your child’s rights have not been respected, you can:
• Speak to your child’s doctor or nurse;
•
Request a consultation with a patient
advocate or ethics committee;
• Request a different doctor;
• File a grievance with the hospital or with state or
federal regulatory agencies’
• Contact AIC
for more information.
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